Belgium Data Desk › Health › Central Registry for Rare Diseases
Central Registry for Rare Diseases
The Central Registry of Rare Diseases is a database containing certain basic data of all Belgian patients with a rare disease. At present, data is collected only at the genetic centres, but this will later be extended to other centres in order to gain a complete overview. The term "rare diseases" is used to refer to di
- Publisher
- Sciensano
- Licence
- ODC-BY
Open licence — reuse allowed, usually with attribution - Topic
- Health
- Type
- Dataset
- Last updated (catalogue)
- 2026-08-11
- Formats
- XLSX, PDF, CSV, JSON
- Contact
- info@sciensano.be
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Official page at the publisher ↗
Download link checked on 2026-10-04: 2 of 2 worked. This page describes catalogue information. It does not state that the data is correct.
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